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Archive: November, 2012

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i AM WHO i AM Presentation – November 21, 2012

061Wow, what an exciting day! The Pine Ridge Secondary School once again welcomed Muscular Dystrophy Canada to their school for a wonderful i AM WHO i AM presentation of positive messages and opportunity to interact with one another.

This week was also part of anti-bullying month and in order to mark this event, Pine Ridge Secondary School held three assemblies that featured the motivational speaking and incredible dancing of Luca “Lazylegz” Patuelli, a National Muscular Dystrophy Canada ambassador.

i AM WHO i AM presentation Nov 21.12 024Luca provided the story of his triumph and how he became one of Canada’s best B-Boys in the break dancing world.  Luca’s message was both powerful and thought-provoking.  He shared how everyone has strengths and should live their life as they choose because everyone is an individual and should be proud of whom they are, which really upholds the motto “I am Who I Am.” Luca also combined this with his message of “No Excuses, No Limits” which means we can all do anything we want if we put our minds to it.  The performances were outrageous and included some high stepping moves and spins that simply were out of this world.  Luca not only performed his talents but shared the stage with many of the students from Pine Ridge Secondary School where they showed off their break dancing talents.  All in all it was an exciting day, which brought the message of acceptance and kindness to all, home.

On top of the three performances there were fundraising efforts to directly benefit Muscular Dystrophy Canada.  These included the sales of I am who I am T-shirts, wrist bands and a sub day fundraiser.

i AM WHO i AM presentation Nov 21.12 001Luca also sold his merchandise which included t-shirts and wrist bands with part proceeds going back to Muscular Dystrophy Canada.

Muscular Dystrophy Canada staff were on hand to celebrate this day and to answer questions on supports and services provided through Muscular Dystrophy Canada.

All in all an excellent day that was inspiring, informative, exciting and “sick” to quote Luca, which means excellent, so I am told.

Thanks again Pine Ridge Secondary School for the wonderful job in organizing such an awesome day and for inviting us.  We love the school spirit and the genuine warmness of you all.  See more pictures here.

Karen Dunbar is a Services Specialist in Ontario and Nunavut region.

Respiratory care education session held with Dr. John Bach

Dr. Bach persevered through Hurricane Sandy and was able to join us for an exciting day of learning on November 2nd at the Nova Scotia Rehab Center in Halifax. Muscular Dystrophy Canada was so pleased to provide this much needed learning opportunity for our clients and professionals in the Atlantic region.

Dr. Bach discussed his individual cases, success stories, his approach to non-invasive ventilation and his concerns with the use of oxygen when persons with neuromuscular disorders are in respiratory distress. Lori Gillies of Quality Respiratory Care was on hand with equipment, and together with Dr. Bach, measured blood gas levels, lung volume levels and demonstrated the use of cough assist machines on more than willing clients of Muscular Dystrophy Canada. One person describes the experience as “an amazing opportunity. It was informative yet scary to realize how little I knew. I had a few ‘aha’ moments.”

We appreciated both Dr. Bach’s and Lori’s passion and patience in discussing with individuals their situation and level of understanding about what should be done in relation to their respiratory health and care.

There was an excellent turn out of professionals working in the field from all parts of the Atlantic earlier that day. It was very encouraging to see their passion as well as their concern for providing the best and most up to date care for Respiratory Health.

Thank you to all those who attended our Respiratory Care Education Session at the NS Rehabilitation Center and for taking advantage of this learning opportunity and being proactive in improving your respiratory health!

We hope to hold more of these sessions in Atlantic Canada this coming year to go hand in hand with the long anticipated launch of our two respiratory care manuals; one for professionals working in the field and one for individuals living with neuromuscular disorders, that Muscular Dystrophy Canada has been working on together with Joe Foote of Quality Respiratory Care and Dr. Colleen O’Connell of the Stan Cassidy Centre for Rehabilitation. Look out for them!

For more information on Dr. Bach, visit his website.

Asha Noel-Hart is a Services Support in the Atlantic Region.

Respiratory care education session held with Dr. John Bach – edit

Dr. Bach persevered through Hurricane Sandy and was able to join us for an exciting day of learning on November 2nd at the Nova Scotia Rehab Center in Halifax. Muscular Dystrophy Canada was so pleased to provide this much needed learning opportunity for our clients and professionals in the Atlantic region.

Dr. Bach discussed his individual cases, success stories, his approach to non-invasive ventilation and his concerns with the use of oxygen when persons with neuromuscular disorders are in respiratory distress. Lori Gillies of Quality Respiratory Care was on hand with equipment, and together with Dr. Bach, measured blood gas levels, lung volume levels and demonstrated the use of cough assist machines on more than willing clients of Muscular Dystrophy Canada. One person describes the experience as “an amazing opportunity. It was informative yet scary to realize how little I knew. I had a few ‘aha’ moments.”

We appreciated both Dr. Bach’s and Lori’s passion and patience in discussing with individuals their situation and level of understanding about what should be done in relation to their respiratory health and care.

There was an excellent turn out of professionals working in the field from all parts of the Atlantic earlier that day. It was very encouraging to see their passion as well as their concern for providing the best and most up to date care for Respiratory Health.

Thank you to all those who attended our Respiratory Care Education Session at the NS Rehabilitation Center and for taking advantage of this learning opportunity and being proactive in improving your respiratory health!

We hope to hold more of these sessions in Atlantic Canada this coming year to go hand in hand with the long anticipated launch of our two respiratory care manuals; one for professionals working in the field and one for individuals living with neuromuscular disorders, that Muscular Dystrophy Canada has been working on together with Joe Foote of Quality Respiratory Care and Dr. Colleen O’Connell of the Stan Cassidy Centre for Rehabilitation. Look out for them!

For more information on Dr. Bach, visit his website.

Asha Noel-Hart is a Services Support in the Atlantic Region.

Consciously Shifting Gears

“He has achieved success who has worked well, laughed often and loved much.” -Elbert Hubbard

Balance is an incredibly important idea that can create space, clarity and flow in our lives. Every once in a while we shift in and out of balance, and in order to re-stabilize the balance in our lives we have to be consciously aware of what creates a healthy balance in the first place. Things that we value or choose to fill our time with are diverse and vary person to person. It is valuable to look critically at all the aspects of our lives in order to see what we are needing more or less of in order to create that equilibrium.  In order to re-calibrate the balance in my life, I do a dynamic exercise that I want to share with you!

To start, create a pie chart with different aspects of your life (to narrow the focus, we will say a snapshot of a week). Include all things that you fill your time with.. and be honest! For example, school, family, friends, computer, TV, activities… Each section will be a loose representation in size of how much time you spend on the specific area per week. Your pie chart will be completely unique to you.

Then, on the other side of the paper – start over and use the same things that you have on the first pie chart but make the sections bigger or smaller displaying more of a refection of how much time you would like to spend on each area within your week.

Be realistic and get creative with your “possibility” pie chart. The idea is to shift and re-prioritize what’s already in the first pie chart instead of trying to add more things in to fill up your time. Put positive energy and thought into the exercise and through creativity, make it come alive on your paper.

Once you have completed it, congratulate yourself for taking the time to critically look into your life and enjoy the feeling of having an intention set. If you put it out there with positive intentions and with true dedication, it will start to actualize in its own way throughout your life. Your own balance scale will start to feel a sense of equality that is just right because you created it with the things you already do!

We all have the power to create balance our lives, so I encourage you to take the time and effort to invest in your self-reflection. It will be well worth the effort!

Kendal Gerus is a MuscleFacts and Bridges to the Future Program Coordinator.  This article is an excerpt from Bridges to the Future newsletter, you can read the full version here.

“Life is a balanced system of learning and evolution. Whether pleasure or pain; every situation in your life serves a purpose. It is up to us to recognize what that purpose could be.” -Steve Maraboli

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Edmonton THRILL The World 2012

On October 27, 2012, fifteen dancers of all ages in Edmonton joined “Thrill the World” (TTW), simultaneously dancing Michael Jackson’s Thriller with over 10,000 dancers from around the world!  Two-time TTW Edmonton organizer Chelsea Dusfresne, did an outstanding job organizing every detail of the event – from recruiting volunteer photography and videography, promoting the event through social media and local community calendars, soliciting and preparing a well rounded silent auction, to planning and leading dance workshops to teach new dancers the Thriller dance.

Though Chelsea has always been focused on creating awareness for important causes in her community, it was during her first summer spent working at Muscular Dystrophy Canada’s Edmonton Community Office that she became passionate about raising funds and awareness for those affected by neuromuscular disorders.  She decided to make TTW Edmonton 2012 a fundraising event for Muscular Dystrophy Canada and did a super job raising over $600 in proceeds from the event.  While planning the event Chelsea did an incredible job connecting with the Grant MacEwan Student’s Association and gaining full support for a “Thrill Club” on campus, and even connected with Edmonton’s local Thriller dance group, Thrill The Ave, in order to keep the momentum moving all year long!

TTW Edmonton is already in the planning stages for 2013 – with plans in the works to entertain at the Edmonton Safeway Walk for Muscular Dystrophy!  Be sure to check out TTW Edmonton’s website, where you can see photos from the event along with the video action!

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