Muscles In Motion
2010 marked the first year for Muscles in Motion. An event I had been thinking about for more than five years was finally happening. 2013 marked our third year, tripling our donations and helping create more awareness for those affected with neuromuscular disorders. As we prepare for our upcoming event on May 31st, it looks like we will again raise even more money and awareness. Below you will find out why this incredible event was designed.
I remember the day clearly when I received a phone call from the specialist. I was 18 weeks pregnant with my first child and my nephew Garrett had just been diagnosed with Duchenne muscular dystrophy. The specialist told me it was urgent that I get tested to see if I carried the specific gene because I only had two weeks to terminate if necessary. I was horrified at the thought and in disbelief that someone would even suggest the possibility. At the time we were just learning what Garrett was about to go through, and there was no way I was getting tested even with all the information we had. I would support my child however it would enter the world. My sister at this time received her results and found she wasn’t a carrier after all, but there was a gene mutation when Garrett was developing.