Archive: September, 2015

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Team Party Hardy to #Walk4MD in full Fire Fighter gear

Cowichan KidsOn Saturday, September 26th, Team Party Hardy will walk the 5 km route of the Nanaimo Walk for Muscular Dystrophy like many others in the community. But what makes this group different is that they will be walking in Fire Fighter uniforms, some in the full turn out gear and Self Contained Breathing Apparatus.

Cathy, of Team Party Hardy who will be donning the equipment, took some time to explain why walking in Fire Fighter gear is so important to her and her teammates:

We have been involved in the Walk for Muscular Dystrophy for many years. In 2010 we formed an official team & called it “Team Party Hardy.” Each year we get together, we dress up, we laugh, we cry and we are together with our fundraising family who all want to make a difference.  We continue to do what we can to keep the FUN in FUNDRAISING! We are all very excited to take part, do our share & raise funds for our friends who have become our family.  Why walk?  Why not.  As our team shirts say “walking for those who can’t,” and we will continue to until there is no reason to walk.
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Fostering Positive Communication Between Home and School

This article has been re-posted from the Waterloo Regional Family Network newsletter, Family Pluse. Click here to read the original newsletter

The summer is half over, and even though it seems like we just finished the transition into summer, it’s already time to start thinking about how to transition out. Preparing our children for the school year takes a lot of planning and preparation.

We’re very pleased that this year we have been able to put together a Back To School Seminar focusing on creating positive communication between home and school, with perspectives offered by parents and representatives from both school boards. It’s not always easy to support your child collaboratively in the educational environment they happen to be in. This panel will offer strategies and communication tips to ensure that close and trusting relationships can be developed with those responsible for your child’s learning environment. It will occur Tuesday Sept 1 from 7-9pm at The Family Centre, and we definitely encourage everyone to attend. More information is included in this issue of Family Pulse (see page 4).

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How I See It: Made with Love

IvanaOne of my favorite ways to spend an evening is surrounded by my friends and family sitting at the dinner table. There is nothing better than eating great food and having great conversation. Having a European mother, I was never hungry. She makes everything and anything. If you know my mom, you know that when she cooks, she cooks to feed ten or more.

So I grew up eating nothing but amazing and great food. When I moved out on my own during my university days I tried to take some of my moms cooking lessons with me. But we all know life can get a little busy sometimes and it’s easy to grab snacks out of our bags or finish that half eaten sandwich for dinner.

After being diagnosed with muscular dystrophy, I really had to step back for a moment. I loved sweets and anything else that wasn’t good for you. Chocolate, chips, candy… One of my favorite things about moving out was that I could eat a chocolate bar before dinner and never get in trouble. But now I had a medical condition and I wanted to make sure I wasn’t doing anything to my body that was affecting my health. We are what we eat right?

Eating healthy was so hard to do in the beginning! I am still learning every day what is good for you and what isn’t. I have found that when I eat better, I have a lot more energy and my body works better. Here a few little tips that I live by. Hope you enjoy them!

Ginger

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Awareness 2015: Be Inspired

September is Muscular Dystrophy Awareness Month! Here we are going to highlight some of our wonderful Walk for Muscular Dystrophy Ambassadors:

GwenGuinevere (Gwen) Warner is a sixteen year old girl with congenital myotonic muscular dystrophy. Gwen was born a couple of months too early, and was unable to breathe on her own at birth. She spent three and a half months on a respirator, and her first eight months living in the NICU at RUH Saskatoon, and she was not “supposed” to ever leave the hospital. At the time, we were told she was the “most severely afflicted child they’d seen who’d lived”.

Gwen’s had many difficulties and challenges in her life, but despite all of that Gwen is a very happy girl. She gives us reasons everyday to appreciate life. She shows us lots of smiles, and gives us lots and lots of hugs and kisses. It’s easy to spoil her because she’s such a loving kid. We home school Gwen, and just like other young kids, Gwen is learning about sharing. So there will be a sharing time when Gwen has to tolerate other family members using the television as well. Which is asking a lot, because watching Netflix is one of Gwen’s biggest sources of happiness. She loves watching Dora the Explorer, Barney, Angelina Ballerina and Leap Frog. But Dora’s Fairy Tale Adventure, in which Dora needs to turn into a True Princess to save her friend Boots by giving him “the biggest hug ever” is her all time favourite. We’re pretty sure that Gwen thinks she’s a True Princess too, and we don’t disagree! When it’s sharing time and it’s her siblings turn to watch, Gwen’s learned that it’s usually pretty easy to get a few minutes more of Dora by demonstrating “the biggest hug ever” on them!

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Collecting Pop Tabs for a Good Cause

Allen with this year's haul of pop tabs

Allen with this year’s haul of pop tabs

Allen Parlee, a member of the Central New Brunswick Chapter of Muscular Dystrophy Canada, along with Kevin Montague of the NBTA Credit Union have once again hit their 1 million pop tabs goal this past May.

What started as a pet project to raise some funds for the Chapter has slowly evolved into an opportunity to raise awareness of neuromuscular disorders in the community.  With the help of Fire Fighters in Fredericton, New Maryland and Oromocto , the Lions Club of New Brunswick, several area schools, along with friends and families, the Chapter has managed to meet their million tab goal for the fourth time!

When the aluminum tabs are collected, they are sold as scrap metal, and money received goes to the Central NB Chapter.  One million pop tabs bring in approximately $500-550, but it’s not so much the amount that matters, it’s the public awareness that is invaluable.  Several newspaper articles have been written about their campaign over the years, and now as a result, people pulling are tabs off cans in small towns throughout central New Brunswick and beyond.

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