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Archive: October, 2015

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The Process of Getting a New Wheelchair

In this post, Jeff shares his experience of getting a new wheelchair. Pam then shares her thoughts on the process as the Occupational Therapist who worked with Jeff to get the new wheelchair to conform to him and his needs.

 

Jeff in his new chair at the Atlantic Family Retreat

Jeff in his new chair at the Atlantic Family Retreat, dressed as Gru from Despicable Me.

Part I: Jeff

Having been a power wheelchair user for over 35 years, I’ve gotten used to the process of transitioning from one chair to the next.  As I am an active user and have good health insurance, I’ve been lucky to get a new chair every 5 years.  This is ideal for me as breakdowns start to occur at the 5 year point and repair expenses start to grow.

Last summer I began the process of applying for funding for my new wheelchair.  My first piece of advice is to work with a seating clinic at your local rehab centre, if you have one.  If not, work with an Occupational Therapist who is familiar with prescribing wheelchairs.  Not only will they do all the work in collecting quotations and submitting funding requests to insurance companies, government funders or non profits, they are also familiar with a variety of options for wheelchairs and will ensure that your health/independence/day to day functioning are maintained or improved during the process.

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#Walk4MD 2015 Wrap Up

Thank you to everyone who participated, donated or volunteered at a Walk for Muscular Dystrophy event this year! We asked each region to write up what the highlights of their 2015  Walk season where – here’s what they said:

Atlantic

Our 2015 Atlantic Walks for Muscular Dystrophy ended with a great final event in St. John’s on September 12th! A HUGE and HEARTFELT thanks to participants and their families, teams, donors, leadership volunteers,  Chapters, Fire Fighter friends, local sponsors and our regional sponsors- Lawton’s Home Healthcare, West Jet, Bounty Print and Vital Aire. To date, we have raised more than $200,000 at Walks in Atlantic Canada this year!

Congratulations to our provincial West Jet winners:

NS-Sarah MacKinnon(Pictou County Walk)

NB-Jocelyn Longpre (Moncton Walk)

NL-Rosemary Norman(St. John’s Walk)

PE-Krista Ahern (Charlottetown Walk)

Dystro-25Québec

The atmosphere at all of the Quebec Walks was celebration and joy. Sunshine and music filled every event – professional singers or DJs at each Walk made for wonderful events where everyone had fun. Participants also came in larger numbers, which tell us that this event has become more and more popular. The highlights of the 2015 Walk season were undoubtedly a balloon release in memory of a participant who left us, a Wheelchair race, a rally, super energetic animators, a trio of musicians, dancing firefighters and lots of adorable mascots!

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Q&A with Dr. Lawrence Korngut, Chair of CAN-NMD

The following is an excerpt from Safeway and Muscular Dystrophy Canada’s Research in the Works 2014-2015.

Korngut original tw

Dr. Korngut with the Dixon Family

Dr. Korngut (MD, FRCPC) is a Clinical Assistant Professor of Neurology at the University of Calgary and a member of the Hotchkiss Brain Institute. He was one of the 11 principal investigators with a shared vision who joined together to apply for—and receive—a 3-year grant from CIHR’s Institute of Musculoskeletal Health and Arthritis to develop CAN-NMD.

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