Archive: September, 2017


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You Can Make The Impossible Happen: Help Us Invest In Hope

Dear Supporters,

Each year, more Canadians are diagnosed with neuromuscular disorders and there is still no cure. Now, for the first time ever, there is hope on the horizon.

Today, we can proudly say that we are at a turning point in the fight against neuromuscular disorders. Not only are newly diagnosed patients and individuals leading more independent and active lives while living with this disease, but they are also living with the hope of a cure.

One young man who inspires us is Sam. Sam has Spinal Muscular Atrophy (SMA) and is starting his first year of university in September. He hopes and believes that research will change his life and the lives of the other people he has met who are living with SMA.

Like Sam, they are all waiting for a major-medical advancement and ultimately a cure to be found. And, until then, Sam is determined to keep studying, and hoping for a breakthrough.

Today, without your support to invest in the best and most innovative research, people living with this terrible disease will have to wait longer for a cure that can’t come soon enough. Your gift today gives our community the hope needed to keep dreaming.

Because of you, researchers are crossing into new and uncharted territories. With the discovery of CRISPR, a technology that allows scientists to edit genetic code, cures for neuromuscular disorders are becoming more and more likely.

Canada's Top Researchers - Muscular Dystrophy Canada

Because of you, we’re working with some of Canada’s top researchers.Top left to right: Amy McPherson PhD, Louise Rose PhD
Bottom left to right: Dr. Janice Richman-Eisenstat, Dr. Sherri Katz

Only recently, scientists at Toronto’s Sick Kids Hospital used CRISPR to treat paralyzed mice with the hopes of restoring movement. Not only were they able to restore movement, but the mice also started to regain muscle strength. Soon, the mice were walking again. This is a revolutionary breakthrough, accomplished by scientists right here in Canada.

Restoring movement to a paralyzed patient was once the stuff of miracles, soon it could be what’s possible.

Not only are we working with some of Canada’s top scientists and researchers to find cures, but also with clinicians and doctors who are working to improve the quality of life for neuromuscular patients today.

With your help, Muscular Dystrophy Canada is investing in critical research and providing more resources, education, and services to families faced with neuromuscular disorders than ever before.

This past year, we have awarded grants to researchers Amy McPherson and Dr. Sherri Katz in Ontario as they find new ways to improve the breathing of children with Duchenne Muscular Dystrophy. In Alberta, we are working alongside Dr. Janice RichmanEisenstat as she develops a world class pilot project on respiratory issues. Your investment in Muscular Dystrophy Canada enables us to work with some of the brightest minds in the field.

Until we find a cure, one of the most important things that we do as a community is to be there for families, reminding them that they are never alone.

When asked what research means to him, Sam said, “knowing that people are working day and night to find a cure. It means I can go to bed with the dream that tomorrow will hold what I’ve been waiting for……a cure. This is a powerful motivation to keep moving.”

Having you in our community of supporters makes what we do possible. And this year, because of you, researchers across Canada have access to almost a million dollars in funding to improve lives, develop treatments, and research cures for people living with neuromuscular disorders.

Monthly giving is the very best way to an improved quality of life and treatments while searching for a long awaited cure. By making a donation today, you give us the resources to keep pushing towards a future free from neuromuscular disorders. Please join our Circle of Strength today and provide ongoing vital funding to research grants.

You are what makes all of this possible. Your support means that we are improving the chances of people, like Sam, who are diagnosed with neuromuscular disorders, while supporting their families with top quality services as we continue searching for a cure.

We are more confident than ever that a cure will be found. Finding a cure can’t happen soon enough as, every day we wait, we lose more friends and loved ones.

We need your support today so that we can provide our researchers with the resources and tools they need to continue their work. Help us give the gift of hope to individuals like Sam struggling with a neuromuscular diagnosis.

Thank you for believing in our mission and a world free of neuromuscular disorders. Your gift today will continue to make the impossible happen.

Barbara Stead-Coyle

P.S. – Thank you for giving a gift of hope and investing in research for individuals like Sam who are waiting for a major breakthrough or cure. Please make your gift today so we can tell Sam to keep pursuing his dreams.

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