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Recommendations provided by the Institut national d’excellence en santé et en services sociaux (INESSS), the regulating body in Quebec, have resulted in the approval of SPINRAZA (nusinersen) for Spinal Muscular Atrophy (SMA) Types 1, 2 and 3 patients in that province.
A total of 5 research projects amounting to $235,000 will be funded by Muscular Dystrophy Canada (MDC) in 2018/19 through its Seed Grant Program and ongoing donor support.
Several years ago, the Canadian Fire Fighter Curling Association (CFFCA) retained a telemarketing company to assist in fundraising for their annual curling event.
In response to your requests for information, please see below a brief update on the progress towards bringing SPINRAZA (nusinersen) to Canadian patients affected by Spinal Muscular Atrophy (SMA).
Since 1954, Fire Fighters have been raising funds for Muscular Dystrophy Canada (MDC). Whether they are holding a boot drive, sitting on their ladders or camping out on a rooftop, their dedication and hard work it has made a significant impact on the lives of our clients and families.
It has been brought to our attention that there is another possible phone scam related to MDC and Fire Fighters currently targeting Canadians.
On behalf of the thousands of Canadians who are affected by neuromuscular disorders, Muscular Dystrophy Canada welcomes the federal government’s commitment to increase funding for medical research and study the introduction of a national Pharmacare program.
Muscular Dystrophy Canada (MDC) has selected the recipients of 2017/18’s Seed Grant competition. MDC was thrilled to receive a total of 9 submissions, making this the most successful call for submissions to date, and will fully fund 6 of the research projects.
Muscular Dystrophy Canada (MDC) has received a $50k grant from the Canada Post Community Foundation for an important nationwide project that will impact thousands of people dealing with a neuromuscular disorder.
This August 9th, 20% of all sales made nationwide on their Give Back Specials through their website will be going to Muscular Dystrophy Canada. Each month they choose one of the many amazing organizations in the city of Calgary, working to make the community a better place, and run an online fundraising sale for their programs.
Muscular Dystrophy Canada is stepping forward with a public offer to assist Josh Kortlevene, as they do with all Canadians with a neuromuscular disorder, to ensure that he gets the equipment he needs.
Muscular Dystrophy Canada is teaming up with Starratt Family Foundation to increase funding for the Seed Grant Program! This will increase the funding from $250,000 to $300,000 that will be available to invest in neuromuscular research.
An Ontario family has had their wish come true with help from Muscular Dystrophy Canada (MDC), our partners and a caring Fire Fighter. Despite what they had been told, Bri Reynolds, will be heading home to spend Christmas day with her husband and children.