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Walk for Muscular Dystrophy season kicks off May 2!

Toronto, ON – April 29, 2010 – Every day, at least one person in Canada is diagnosed with a neuromuscular disorder. Characterized by the progressive weakness and wasting of the voluntary muscles that control body movement, muscular dystrophies do not discriminate – anyone can be affected.

From May 2 to October 2, over 50 Walk for Muscular Dystrophy events will take place across Canada. To view Walk for Muscular Dystrophy locations or to register for a Walk, visit www.muscle.ca/walk.   

By registering and raising funds for one of these Walks, you will be helping Muscular Dystrophy Canada to enhance the lives of those affected with neuromuscular disorders.

Muscular dystrophy is a progressive disorder; the needs of those affected are constantly changing. Many people with a neuromuscular disorder require our support with the purchase of necessary equipment.

The average cost of:

  • Powered Wheelchair - $17,600
  • Van Lift - $10,000
  • Mechanical Ventilation Machine - $5,000
  • Electric Hospital Bed - $4,500

When you participate and fundraise for one of our Walk for Muscular Dystrophy events, you are helping to ensure the continuation of equipment and support programs as well as the progress of well-funded neuromuscular research, so that better treatments and a cure can be found.

Walk for Muscular Dystrophy events are family-friendly, community initiatives with wheelchair-accessible 1 to 5 km routes, entertainment and snacks. When you register for a walk before June 4, you are automatically entered into our National Walk with Champions contest for a chance to win a trip for four to Toronto.

Together we can make muscles move! 

Media Contact:
Berta Mascarenhas
National Manager, Marketing & Communications
Muscular Dystrophy Canada
Tel.: 416-488-0030 ext. 158  

 

Keith Martin to carry Olympic Torch

Vancouver, BC – February 11, 2010 – Muscular Dystrophy Canada Ambassador Keith Martin will take to the road - again! Keith will carry the Olympic Torch along East 1st Street Avenue from Salsbury Drive to Semlin Drive in Vancouver on Friday, February 12 at 10:00 AM PST.


Keith was diagnosed with Facioscapulohumeral Dystrophy (FSHD) in October 2005. FSHD is an autosomal dominant disorder that affects the skeletal muscles.  FSHD occurs in the Canadian population at an estimated frequency of about one in twenty thousand.


Keith gained national recognition when he and four friends – The Flying Five – participated in the Moving Muscles Ride 2008. They cycled across the country raising $150,000 along the way through a letter campaign.


Currently in the process of completing a Bachelor of Applied Science at the University of British Columbia, Keith is proud to be a part of the Torch Relay.
“I am a huge fan of the Olympics! I think it's amazing how the world comes together to celebrate the competing athletes and their achievements. The passion and pride is incredible,” Keith wrote in an email.  


“Being in Vancouver for these Olympics is that much more special. It’s truly a once-in-a-lifetime opportunity.”


Keith Martin along with Danielle Campo, Russ Howards and Danielle Peers, who carried the Olympic Torch in January in Edmonton, are Muscular Dystrophy Canada’s National Ambassadors.


Muscular Dystrophy Canada’s mission is to enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well-funded research.

Rapper with Muscular Dystrophy Launches Debut CD

Abnormal Music Therapy is the debut CD from Canadian Rapper Abnormal.

Toronto, ON– Rob embraced music when his physical disability took him off of the baseball field.

Fifteen years after a Becker muscular dystrophy diagnosis, Rob has launched his first CD entitled ‘Music Therapy.’ The seven-song disc takes us through Rob’s experiences living with muscular dystrophy. 

 “I was diagnosed with Becker Muscular Dystrophy at the age of 10. At that young age I didn't quite understand what it meant to have a disease,” explains Rob. “As I grew up, I noticed a lot of differences between me and other kids. I walked with a limp; I couldn't run and was unable to go up stairs.”

Inspired by hip hop greats Biggie, Tupac and Jay-Z, Rob says creating the hip hop disc was his therapy.

“I've been different my whole life…I got teased a lot and that’s what turned me to rap music.” Putting the CD together “helped me to relieve my stress,” explained Rob in a telephone interview.

To help others with muscular dystrophy, Rob is donating a dollar from the sale of each disc to Muscular Dystrophy Canada.

When he’s not working on his music, Rob gets back to his love of baseball by watching on TV or taking in a game at the Rogers Centre.

Becker muscular dystrophy (BMD) is an inherited degenerative muscle disease. It is a milder and less progressive variation of Duchenne muscular dystrophy (DMD). Both disorders are caused by a mutation of the dystrophin gene which causes a deficiency of the protein dystrophin.

To purchase a copy of Rob’s CD visit abnormalmuzik.com or stop by Doce Minho Bakery in Bradford, Ontario.

Stokes International Donates $9531.66 to Muscular Dystrophy Canada

David Mellor, President of Stokes International, dropped by Muscular Dystrophy Canada’s national office in Toronto on November 12, 2009 with a cheque for $9531.66!

 "This is an opportunity for Stokes to help support and give back and we are pleased to be partnered with Muscular Dystrophy Canada, a truly worthy cause,” David said about the cheque presentation to Kevin Harrison, National Director of Corporate Giving and Catherine Sherrard, Chief Executive Officer of Muscular Dystrophy Canada.

The donation was made on behalf of Stokes International’s customers and employees and is part of a new program initiated to help celebrate Stokes International’s 60th year in business.

“We look forward to continuing to support Muscular Dystrophy Canada for many years to come," David said about his company’s new program and partnership.

Stokes International manufactures and sells top-of- the-line uniforms, equipment, supplies and regalia.

 

 

 

 

5th Annual Canada Life Charity Softball Invitational Raises $102,000 for Muscular Dystrophy Canada and the Greater Vancouver Food Bank

On July 24, The Canada Life Assurance Company (Canada Life) held its 5th Annual Charity Softball Invitational at Softball City in Surrey. This year’s event raised over $102,000 for Muscular Dystrophy Canada and the Greater Vancouver Food Bank.

Canada Life was pleased to make a $40,000 contribution to this year’s fundraising total through The Key to Giving™, the national corporate citizenship program of Canada Life, Great-West Life and London Life.

“The Canada Life Charity Softball Invitational has grown into an enjoyable and effective way to make a difference in our communities,” says Michael Tomlinson, Regional Marketing Consultant, Canada Life. “The amount of money raised has doubled over the Invitational’s five years, thanks to the efforts of a dedicated organizing team and event participants who combine their love of softball with a healthy measure of community spirit.”

Over the past five years, this Invitational has been extremely successful, raising over $250,000 for various charities in the Lower Mainland.

Muscular Dystrophy Canada is committed to improving the quality of life for thousands of people living with neuromuscular disorders. Funds raised by generous groups such as Canada Life, help to purchase mobility equipment and provide essential support services and programs that allow people living with neuromuscular disorders to enjoy active and independent lives within the community.

Photo Caption: Muscular Dystrophy Canada’s baseball team spends some time with the Canada Life mascot

Muscular Dystrophy Canada Ambassador Danielle Peers to carry Olympic Torch

For Immediate Release

Muscular Dystrophy Canada Ambassador Danielle Peers to carry Olympic Torch
Edmonton, AB – January 12, 2010 – Muscular Dystrophy Canada Ambassador and Paralympics’ bronze medalist, Danielle Peers will wheel the Olympic Torch down Groat Road in Edmonton starting at 111 Avenue, at 4:30 pm on January 13.

A recipient of gold medals, league titles, all-star honours and MVP awards for basketball, Danielle was not aware she had a neuromuscular disorder until she was nearly 20 years old. Following unexplainable pain, Danielle was diagnosed with Limb-Girdle Muscular Dystrophy 1 (LGMD1), affecting several muscles in her lower body. By the time Danielle was diagnosed, she had already switched from stand-up to wheelchair basketball.

Currently in her first year of a PhD at the University of Alberta, Danielle was “blown away” upon hearing the news that she had been selected by the University of Alberta to represent the school and carry the torch.
Busy completing coursework, finishing up her third film “And the Rest IS Drag”, playing recreational wheelchair basketball, and mentoring and coaching local athletes, Danielle will be cheering Canadian athletes from afar.

“After having experienced it from the inside (the Olympics), it would feel kind of strange to attend the Games as a spectator,” Danielle wrote in a recent email.
Danielle Peers along with Danielle Campo, Russ Howard and Keith Martin are Muscular Dystrophy Canada’s National Ambassadors.

Muscular Dystrophy Canada’s mission is to enhance the lives of those affected with neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well funded research. For more information on muscular dystrophy or Muscular Dystrophy Canada, visit www.muscle.ca

Media contact:

Berta Mascarenhas
National Manager, Marketing and Communications
Muscular Dystrophy Canada
Tel: 416-488-0030 ext 158
Email: berta.mascarenhas@muscle.ca



Muscular Dystrophy Canada Ambassador Danielle Peers Carries Olympic Torch

Edmonton, AB – Muscular Dystrophy Canada Ambassador and Paralympics’ bronze medalist Danielle Peers wheeled the Olympic Torch through Edmonton streets on Wednesday, January 13, 2010.

Danielle used a wheelchair equipped with winter tires and a specially designed torch holder to make the 400-meter trek down Groat Road. Fire Fighters and Muscular Dystrophy Canada staff member Terri Tumack were on-hand to congratulate and root for Danielle.


Kevin Harrison nominated for Cisco’s 25 Transformational Canadians Award!

Our very own Kevin Harrison has been nominated for Cisco’s 25 Transformational Canadians featured In the Globe and Mail and La Presse Affaires! To mark Cisco's 25th anniversary, Cisco Canada has launched this exciting national campaign to celebrate 25 individuals who, through their vision, leadership and action, are catalysts for transformational change. 

In recognition of the 25 Transformational Canadians' efforts, Cisco will donate up to $25,000 worth of technology to the non-profit or charitable organization of each winner's choice PLUS ALL FREE PUBLICITY!.

With the 25 Transformational Canadians launch, online and in print, Kevin's nomination page is up and running and we need you to help drive his nomination. Here’s how you can help:

  1. Click on the links below to read Kevin’s story in the Globe and Mail.
    http://www.theglobeandmail.com/report-on-business/25/the-nominees/kevin-harrison-muscular-dystrophy-activist/article1705660/
  2. Once you’ve read Kevin’s story, you can extend the reach to as broad a network as possible to drive awareness of and support for his nomination. This can be done two ways:
  • Through the "Share with Friends" or "Recommend" tabs
  • Through the "Start the conversation" section at the bottom
  • If you have worked directly with Kevin offer a few thoughts in the comments area!

 

Developed in partnerships with the Globe and Mail, CTV's Canada AM, and La Presse Affaires, 25 Transformational Canadians will recognize 25 individuals who have significantly impacted society in the areas of business, science and technology, healthcare, environment, education and community through user generated submissions.

The Transformational Canadians program details can be found at www.twentyfive.ca.  Program ends on January 3, 2011.

Congratulations Kevin!