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Stan Cassidy Centre for Rehabilitation

stan-cassidy-centre-logoAdjoining the Dr. Everett Chalmers Regional Hospital in Fredericton, New Brunswick, is the Stan Cassidy Centre for Rehabilitation. This facility is a leader in neurological rehabilitation, taking an interdisciplinary healthcare team approach to providing their patients with the best care.

Patients  from New Brunswick and Prince Edward Island of all ages, and complex paediatric patients from Nova Scotia are  seen at SCCR. It is one of two rehabilitation facilities in Canada that cares for patients through their entire  lives. The medical and therapeutic teams provide  services via five avenues: in-patient, out-patient, tele-rehab, outreach and expert consult.

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Update: Respiratory Care Seed Grants

lungs

Muscular Dystrophy Canada has made it a priority to support research into areas that affect the quality of life of people living with neuromuscular disorders. One of the key issues that impacts on quality of life is respiratory health.  Through its focus on Respiratory Health, Muscular Dystrophy Canada has produced evidence-based resources such as The Guide to Respiratory Care for Neuromuscular Disorders, which is used by patients, families and clinicians across Canada and internationally to help guide care decisions.

Through the Seed granting process, Muscular Dystrophy Canada is supporting research projects that focus on enhancing respiratory health and quality of life in a range of neuromuscular disorders. The Seed granting process is now in its third year, with a number of new proposals currently being considered by a panel of expert reviewers. The results of this research will guide evidence-informed care, and will contribute to the timely and efficient translation of innovations from the research setting to patient care settings. Please stay tuned to the website this fall as we announce the successful projects!

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How I See It: How to use your voice

IvanaIt takes a lot of courage to speak out for what you believe is important. I’ve learned it is definitely something most of us need to practice more because if not us, who? Whether it be at work, at school, on public transport, or at the hospital. If you want something to change – you need to be that voice.

You need to decide what you want to speak up about and how you are going to do it. Stephen Hawking once said that you must concentrate on the things your disability doesn’t prevent you from doing well, and don’t regret the things it interferes with. I believe we all have the power to do something positive. Don’t ever be afraid to raise your voice, especially for honesty and compassion.

I get a million ideas in my head all the time. I am constantly talking to my family, “Well what if I do this?”. I want so badly to influence, to change, and to be a strong voice. I believe I was given this life not to suffer, but to inspire.

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The 53rd IAFF Convention

Fire Fighters from New Brunswick stop by the MDA / MDC booth

Fire Fighters from New Brunswick
stop by the MDA / MDC booth

It was during the 1954 IAFF Convention in Miami, Florida, that Resolution No. 53 Re: Muscular Dystrophy was submitted by the IAFF Executive Board.  It was at that same convention where the following was adopted unanimously by the IAFF Convention:

“Resolved, that the delegates assembled in this convention of the International Association of Fire Fighters sponsor the 1954 campaign of the Muscular Dystrophy Association; and be it further resolved, that a copy of this resolution be forwarded to all locals and that all officers and members be urged to cooperate in every way to make this campaign a success.”

On August 15th – 19th, 2016, the 53rd IAFF Convention took place in Las Vegas, Nevada and Muscular Dystrophy Canada was honoured to be present.  Fire Fighters were encouraged to stop by the MDA/MDC booth so staff could thank them for their partnership and support, and thank them for changing the lives of those affected by neuromuscular disorders.

 

 

A highlight for the Fire Fighters was when the MDA 2016 National Goodwill Ambassador, Joe Akmakjian spoke to the Fire Fighters.  Joe is the first adult to take on this role and he told the Fire Fighters, “these aren’t just children’s diseases anymore and Jerry’s kids are growing up and you have all worked hard to make that happen”.

Last year IAFF Canada raised $1.4 million for Muscular Dystrophy Canada and those affected.  107 Locals showed their support by organizing  Fill the Boot events, Rooftop Campouts and Ladder Sits, sporting events as well as other fundraising initiatives.

We want to thank IAFF Canada, its staff and all of its members for their past and present support, and we know we can count on you in the future.

Joe’s speech –

 

Joe and Pam

Joe and Pam

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Pamela Musgrave is the Director of Revenue in Ontario and Nunavut for Muscular Dystrophy Canada. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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I Can, Take Charge of My Health Education Day: Dysphagia, safe feeding practices

cucumber-veggie-of-the-week-ftrDysphagia is the medical term for difficulty or discomfort swallowing when described as a symptom of a disorder. Our Winnipeg office held an education day, and Patrick  Tremblay-Sabourin, RD presented on the topic of dysphagia. Here is an excerpt from his presentation handout on safe feeding practices:

Before the Meal 

  • Do not provide individual with any food or liquid that is not compliant with their diet texture
  • Ensure individual has all adaptive equipment that they might need.
  • Ensure proper positioning: sitting upright with feet and head well supported.
  • The caregiver should be at eye level with the individual, facing in front of, or along side of the individual. Know the individual and use whichever position works best for both the caregiver and individual.

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