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I Can, Take Charge of My Health Education Day: Dr. Janice

10170263175_da527170b0_kOur Winnipeg office held their I Can, Take Charge of My Health Education Day in March. Dr. Janice Richman Eisenstat, a Pulmonary Rehabilitation Medicine and Palliative Respiratory Care Specialist in Edmonton, was one of the speakers. Dr. Janice as she is known, is an Associate Clinical Professor in the Pulmonary and Neurology Divisions, Department of Medicine at the University of Alberta. Three years ago, she and her colleagues started the first multidisciplinary neuromuscular clinic for adults in North America.

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How I See It: Use Your Voice

IvanaI do not believe that your circumstances make up your identity. I do not believe life is now how it will always be and who you are can never change. I didn’t always think this way, but I believe it now.

One of the biggest questions I think a lot of us ask is, “Why?” Why do we lose the ones we love? Why do we have to fight battles we do not choose? Those are the two biggest. When we lose something or someone, something happens – we stop living.

We all have to face these questions, sometimes more than once. It isn’t easy. We try and beat the odds, while all at the same time keeping the fear of the unknown from sight. We are afraid of what is slowly being taken away and hoping it will all be over soon. But sometimes it never goes away. So what do you do when body armour isn’t helping you? Feel. Feel what hurts so much. Feel what has been hiding. Feel what you are afraid of.

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Stay Safe! Wildfire Preparedness

14852815074_fd07458075_oTWThis article is being written as firefighters from coast-to-coast reflect on the outstanding efforts put forth by their colleagues in Fort McMurray. We salute all of the first responders, many of whom who put the good of the community ahead of their personal considerations, as they dealt with the devastation of the wildfire that swept through the Fort McMurray area in early May.

Over the past couple of articles we have offered thoughts and suggestions as to how someone with a neuro-muscular disorder might prepare for the occurrence of an emergency which impacts you personally. Of particular importance were the preparations we recommended you put in place, in the event you are displaced from your home. A wildfire would certainly be such an event.

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Shoe Campaign – Getting your school involved in the Walk4MD

Chris Mino and his family

Chris Mino and friends

The Walk for Muscular Dystrophy brings together friends, family, communities, companies, and even schools! The Mino Family wanted to get their son Christopher’s school involved in fundraising for their Walk4MD team, Team Christopher. So in 2013, they approached the school about hosting a fundraiser. Chris’ teacher, the school principle, and his parents worked together to create the shoe campaign. Since then, more schools have been joining in – and we think yours should too!

How it works

A school can support the Walk for Muscular Dystrophy and/or a specific team by hosting a shoe campaign. Students can purchase a paper “shoe” for $2.00-$5.00. The kids can write their name and decorate the shoe, with them then being proudly displayed in the hallway! Challenge the school to have shoes covering from one end of the school to the other!

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International Congress on Neuromuscular Diseases to be held in Toronto

AAEAAQAAAAAAAAVvAAAAJDhhNjE1MjdhLTg1YTYtNGIzMy04NzA0LTEwZjkyN2VlMmJhOAThe International Congress on Neuromuscular Diseases (ICNMD) will be held in Toronto from July 5 – 9, 2016, and Muscular Dystrophy Canada will be there! The Congress brings together outstanding scientists from around the world, ranging across the spectrum of neuromuscular disorders. The program includes multiple sessions on muscular dystrophies, exploring the latest research and providing updates on understanding the genetics, pathogenesis, evaluation and treatment of neuromuscular disorders.

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