Register to Receive Services

Muscular Dystrophy Canada provides a number of services to people registered with our Association, including: Information and Education, Equipment, Peer and Chapter Support, Referral, and Social Action.  You may obtain a Muscular Dystrophy Canada registration form from one of our regional offices or through the "Register Now" link at the bottom of this page.

To register, fill out the form and return it to any Muscular Dystrophy Canada office. The completed form must include a confirmation of the diagnosis by a physician. There is no cost to register, and the information you provide is always kept confidential. You become eligible for Muscular Dystrophy Canada services as soon as your registration form is approved.  In addition, you must:

  • Be a Canadian citizen, landed immigrant, or refugee resident in Canada
  • Have a confirmed diagnosis of a neuromuscular disorder under the Muscular Dystrophy Canada umbrella

Muscular Dystrophy Canada encourages anyone with a confirmed diagnosis of a neuromuscular disorder to register. Each newly registered individual will help to strengthen Muscular Dystrophy Canada's voice - a voice that works to represent the needs of all people living with neuromuscular disorders at community, regional, and national levels.


Information and Education

  • Muscular Dystrophy Canada provides information to people registered with us, their families, their community, professionals, and the general public about neuromuscular disorders and related issues.
  • Information is available in the form of disorder-specific information sheets, research updates, brochures, videos, and books.
  • Muscular Dystrophy Canada publishes a national newsmagazine, Connections, available in both French and English. The magazine features information on a variety of neuromuscular disorders as well as related topics such as research, genetics, parenting, and quality of life.
  • Regional offices also help people in their area keep up to date through regional newsletters.  Services staff in our regional offices will respond to any request for information that you may have, or they will help you find the information that you need.

Equipment Program

The Muscular Dystrophy Canada equipment loan program provides basic medical equipment, on loan, from a stock of recycled devices such as scooters, manual and electric wheelchairs, and hospital beds. Some funding assistance may be available for the purchase of new equipment. If a request is made for a device that the Association does not cover, or only partially covers, Muscular Dystrophy Canada staff may be able to suggest other sources of funding. For more information about equipment funding, call the regional office nearest you.


Peer Support

Support comes in many forms and is dependent on individual needs. Some people already have strong support systems in place through family, community, and church and their needs are minimal. Other people are facing stresses such as financial difficulties or family problems, in addition to the day-to-day reality of life with a neuromuscular disorder. Life can become difficult at particular times, such as when the diagnosis is made or when symptoms seem to get suddenly worse.

The Muscular Dystrophy Canada Peer Support Program offers those facing challenges the chance to talk to someone who has gone through a similar experience. People registered with the Association, family members, and close friends -- trained by Muscular Dystrophy Canada staff – offer information about resources, tips on coping, and an "understanding ear" to people who are looking for support.  For people registered with Muscular Dystrophy Canada who might prefer support in a group setting, MDC staff can refer you to a local network or support group in your area, or even help you to create a new one.


Chapters

Muscular Dystrophy Canada Chapters form a nationwide network of people registered with Muscular Dystrophy Canada, their families, and volunteers. They actively help Muscular Dystrophy Canada to achieve our common objectives especially at a local level. Chapter activities can include support, social events, and fund raising.

Chapter members are often people registered with the Association and their families. However, anyone who is interested in furthering the aims and objectives of Muscular Dystrophy Canada is welcome to join. In communities across Canada, dedicated Chapter members provide valuable time, energy, and experience that ultimately benefit people with neuromuscular disorders and the communities they live in. For the location of the Chapter nearest you, call your regional or community office.


Referral

Staff can provide referrals and contact information to neuromuscular clinics, agencies, and other community resources, to help people registered with Muscular Dystrophy Canada find solutions to problems they face in their daily lives.


Social Action

Muscular Dystrophy Canada engages in social action to ensure that people with neuromuscular disorders can participate fully in all aspects of daily living. It aims to do this by working with other organizations to bring about policy changes in provincial and federal governments and providing volunteers in local Chapters and communities with tools they need to participate in local and community advocacy efforts.