Daily Living

Living with a neuromuscular disorder means continuous change and personal challenge. Accepting the fact that you have a serious, disabling illness that is not yet curable does not mean giving up and doing nothing. Rather, it means continuing to do as much as you can and channeling your time and energy into maintaining the best quality of life and independence.  The physical effects of neuromuscular disorders vary greatly from one person to another, as does the rate of progression. So there is little to be gained from worrying about the future, over which none of us has any control, and much to be gained from enjoying today.

Most of what you will face can be divided up into two distinct areas: