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Muscular Dystrophy Canada’s Newsletter!

Screen Shot 2018-03-08 at 3.41.49 PMMessage from the CEO

 

We are pleased to present our new quarterly newsletter! We hope you enjoy getting to know us better, staying informed and receiving exciting news about Muscular Dystrophy Canada and the clients we serve.

Over the last two years, Muscular Dystrophy Canada has made great strides in creating greater alignment nationwide for our people, moving more money to mission activities and raising the profile of our cause with those who can make a difference.

I would like to thank you for your ongoing support and dedication as we continue to make progress, Pushing beyond Possible and striving to serve more Canadians dealing with the realities of a neuromuscular disorder. We could not do it without you, our loyal donors and supporters. 

Thank you and enjoy!

MDC Newsletter - Fall Issue -2018

MDC Newsletter – Fall 2018

MDC Newsletter - Winter Issue 1

MDC Newsletter – Spring Issue 2

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2017 Walk for Muscular Dystrophy Highlights

 

Highlights From Your 2017 Walk for Muscular Dystrophy

 

Hello Walkers!

It is my pleasure to get to share with you the results from this year’s Walk for Muscular Dystrophy! In the video you’re about to watch, we’ve highlighted incredible spirit and participation from coast to coast.

We are proud to say that together, we hit our milestone of 1.3 million dollars raised! This money goes directly to support families dealing with the challenges of living with a neuromuscular disorder. It supports cutting-edge research that is making leaps towards finding a cure, compassionate programs and services and funds equipment applications to empower clients. These supports make a huge difference in the lives of our families.

The Walk is an important fundraiser for Muscular Dystrophy Canada, but it is also an opportunity for our supporters and community members alike to come together and strengthen the bond we all share. It is a chance for families, individuals, teams, volunteers and Fire Fighters to come together in a shared experience, walking, wheeling, and rolling to raise funds for a cause that we all hold close to our hearts.

The incredible work and enthusiasm you show each and every year ignites our passion and gives us the motivation to keep growing, while bringing new people into our community. We are thrilled with the 2017 Walk results, and we know that with you on our team, we can do even more next year!

Please know your support means the world to our community and we look forward to welcoming you to a Walk in 2018!

Now, for the highlights!

Starting in Newfoundland and Labrador, a big highlight was the participation of Team Roberts and others, who grew the Corner Brook walk by 100%.

On Prince Edward Island, we had a sea of blue as RBC turned up in big numbers to show their support!

In New Brunswick, Serge Lanteigne led the charge and became the top fundraiser in Atlantic Canada with a personal total of $19,970! Incredible work Serge!

And finally, rounding out the Atlantic provinces, the Halifax chapter held a gaming night that raised more than $4,000 dollars pushing the Halifax Walk total over $65,000 making it the top walk in the region!

In Quebec, we had a great turnout with almost 400 participants across the province. The Keindel Family and Friends were the top team raising $11,374!

Over to Ontario where the Peel Walk for MD had not only the largest fundraising total for an Ontario Walk this year, but was the largest Ontario Walk total ever! Congratulations to everyone who was involved in raising more than $70,000! Amazing!

In Manitoba, our Walks continued to grow with more than 200 people coming out to the Winnipeg Walk, the most we have ever had in that region!

It was a record year in Saskatchewan as well, bringing in a total of $87,721 dollars, the highest total to date!

In Alberta, Erin’s Squad led the charge again with an incredible $56,255 dollars raised, making them the highest fundraising team in Canada for the second year in a row! What an incredible accomplishment.

And last but not least, in British Columbia, four of the teams were in the top 10 fundraising teams across Canada! Special shout out to Thee Golden Spirits, MMR and Friends, Team Party Hardy, and Devon’s Dino Team!

We are so proud of the amazing accomplishments that all of our participants achieved in 2017 and the impact they have had on our community. Your passion and enthusiasm for Muscular Dystrophy Canada means that more Canadian lives are impacted each and every year. For that, we send you our heartfelt thanks and gratitude, and can’t wait to see what you will achieve in 2018! Keep on Walking Canada!

Gift of Hope

gift-of-hopeWhen our son, Ethen, was diagnosed with Duchenne muscular dystrophy, we were suddenly faced with lots of questions: Who could help us? Who understood what we were going through?

Our family doctor recommended that we call Muscular Dystrophy Canada. We did, and since becoming clients, we have found Muscular Dystrophy Canada to be kind, helpful and always there for us!

How has Muscular Dystrophy Canada helped us? They have been an integral part of every parent–school meeting, providing teachers and students with important facts about muscular dystrophy. They also were there to explain the government assistance forms and help with the application process.

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Rock on for a cure!

Crew and his painted rocks

Crew and his painted rocks

Ethan (13) and Crew (8) Poirier are no strangers to raising money to support the work of Muscular Dystrophy Canada. They have accompanied the Anderson family to each and every Brandon Walk for Muscular Dystrophy since the Walk started in the community back in 2010. They got involved because of their friend Andrea Anderson who was an inspiration to all that met her. Sadly, as a result of complications with Limb Girdle Muscular Dystrophy, Andrea passed away on April 11, 2015. Ethan and Chase have remained active and involved in honour of their friend Andrea.

The boys have found unique ways to fundraise including hosting an annual Valentines’ Day fundraising party with their grandparents, creating and selling rainbow loom bracelets, preparing and selling sold baked goods at a garage sale, and more. This year, Crew decided that he wanted to raise money for the Walk by selling beautifully painted rocks that he made over the summer – and his contribution helped Team Andrea raise over $1,500. Crew is already planning his rock sales for next summer and plans to expand to create and sell even more rocks!

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Fabulous Fundraising: How One Team Raised $72,000

 

erinkenstoryFourteen-year-old Erin Novakowski is a typical teenaged girl who really loves Starbucks, her phone and shopping. She also happens to have a form of muscular dystrophy called spinal muscular atrophy (SMA) type II.

“Although I never let my disability stop me from doing the things I love, I use lots of assistive equipment to help me throughout the day,” she explains. “And sure, people stare at me, but I just like to think it’s because I’m fabulous and they want to know where I got my pants.”

Erin’s infectious enthusiasm for life is one of the things that her friend Nicole loves about her. “She’s the girl who knows how to make the best out of any situation,” she says. And while Erin and Nicole’s relationship began because Nicole works part-time as Erin’s care aid, their bond has deepened well past the usual hallmarks of friendship, leaving the two of them feeling like sisters.

 

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