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Sunday, May 20, 2018 Deloitte Tower

WHY DONATE

Muscular Dystrophy Canada's mission is to enhance the lives of those affected with muscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well-funded research.

Have you ever heard about Duchenne, DMD or Duchenne Muscular Dystrophy? If your answer is NO, it is normal. Before November 2011, my wife Marie-Eve and I did not. It is at that time than our family life changed forever: our son Eloi (4 at the time) was diagnosed with Duchenne.

Duchenne is a degenerative, rare neuromuscular disorders for which there is no cure. As you can imagine, it is the worst news parents can get. On the bright side: we are not alone in this crusade. At the time of diagnosis, we are put in contact with Muscular Dystrophy Canada (MDC) – the only organization supporting families like ours.

pourquoi donner collage

Following the initial shock, we found out about the High Rise Challenge and decided to register in January 2012. This firefighter event would be our focus and our way to get involved in MDC's mission.

Right from the start or our campaign, the rapid progress of our fundraising somehow attracted the attention of MDC. At the same time, the fire department of Berthier-Sur-Mer were looking for a testimonial during their annual dinner in the benefit of the Challenge. We were put in touch together and accepted the invitation. At our arrival, Marie-Eve and I were deeply touched by the warm and sincere welcome from the firefighters and local citizens.

The rest is history: Eloi and our family have been adopted by the fire department and we have been partners in the Challenge ever since. We also have the privilege of being supported by a second fire department: Montmagny.

After six editions, 75 climbs up the Montreal Stock Exchange Tower and more than $150,000 raised by our team: we stopped counting the number of firefighters / 9-1-1 participants to the event who are supporting our cause. Many contributed to the ascension of Eloi to the roof of the Tower over the years, allowing him to enjoy the ride. Air-brushed helmets given to him by the organization (and to other kids attending the event) are also putting sparkles in their eyes. The generosity of our donors and their loyalty never ceases to amaze us.

More than 60 years ago, firefighters initiated their alliance with MDC. With the High Rise challenge, it is now the full 9-1-1 community, along with the Armed Forces and civilians who have joined the crusade.

The Challenge in the extreme version can be taxing, but it is only one day. Eloi and those like him are climbing their High Rise daily.

On behalf of Eloi and our family, a big thank you for your involvement and making muscle moves!

– Alfred Breton-Paré, team Montmagny-Eloi-Berthier sur mer