Chapter Volunteer Profiles: Western Canada

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Community Volunteer Chapter Member Profile

When their daughter Crystal was diagnosed with Spinal Muscular Atrophy in 1990, instead of letting the disease define the family, the Rondeau Family — parents Cheryl and Steve, and daughters Crystal and Cherisse and foster children Ellena and Ardell — turned this fundraisers, Christmas and Halloween parties and more to engage participation of individuals and their families. Providing support and encouragement for families with Muscular Dystrophy is a passion for Cheryl.

In addition to being a support person to her sister Crystal, and inspired by her parents commitment to volunteerism, Cherisse became the secretary for the volunteer chapter. Recognizing that living with a disability can be isolating and lonely Cherisse recently implemented a communication strategy where all chapter members receive a card on their birthday.

Crystal Rondeau uses her own experiences with Muscular Dystrophy to educate the greater community about what it is like living with a disability. She is always ready to attend events in the community to help put a face to Muscular Dystrophy.

With a “tell it like it is attitude” and seemingly endless amount of energy, this family embodies the philosophy of volunteerism giving their time, talent and resources to meet the needs of others.

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