How I See It: Introducing Ivana


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Hello! I’m Ivana,

If you have read any of my blogs on Muscular Dystrophy Canada or through my website Mila Rosa, you would know that all I ever want is to have a positive impact. I love being creative and learning new ways to brighten up my life. Along the way, I hope to inspire you to do the same too.

I try and stay positive and sometimes am annoyingly optimistic. But I believe in the good. I believe in being kinder. Every day I try and become a better person than I was yesterday.

When I was first diagnosed, hearing the words – there was an immediate darkness. Everything changed in that moment. I was diagnosed with LGMD2A in my very early 20s, while attending post secondary school. It has changed a lot for me – the way I think, the way I plan, etc. But one thing this disease will never take away from me are my words.

This disease has taught me a lot about myself. I have learned that it’s okay to break down and go through all the emotions that come after a diagnosis. I have also learned how truly powerful a positive attitude can be. I have taken those emotions and turned them into something that I hope will make a difference. So when you ask me what I want to accomplish through this feature, it’s very simple. I want to get back up and fight this disease – and take you along with me.

My goal is not to just survive this disease; I want to thrive beyond it. Everything I write I hope you feel the passion, the humor, and emotion. If I can bring a smile to one person’s face or give hope to someone that needs it during their hardest moments – that is what I want most. I want you to learn something new, to keep your dreams alive, to be motivated, and to believe.

So with each article I hope to accomplish one thing off my list and I hope yours as well.

I am very excited to start this new feature in moveit!  I will be writing about what I seek answers to the most, what’s innovative, new discoveries, etc.  Every couple of months I hope to bring you a fresh perceptive from “The View from Here”.  I will be writing about what I seek answers to -  genetics, travel tips and the most accessible places to travel, best types of therapy, vitamin research, stem cell research, technology benefits, and I hope to be learning about your stories too.

I hope my words encourage you to stay strong, to keep pushing yourself past all rational limits and to never let yourself give up. Even when you’re out numbered – fight.


Ivana was born in Sanski Most, Bosnia & Herzegovina but moved to Canada at the age of 3. She was diagnosed with LGMD a few years ago and it has forever changed her life.  She is a regular contributor and her blogs will be everything she has learned along the way and what she continues to learn today. Read Ivana’s personal blog at:

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