Watch & Learn |
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Orphanet – The portal on rare diseases. A resource for patients, caregivers and health professionals.
Presenter: Gail Ouellette, Ph.D., Director, Quebec Coalition of Orphan Diseases and Mayss Naccache, M. Sc., Information Scientist for Orphanet-Canada.
Description: Orphanet is the international database on rare diseases. It contains information on 6000 rare diseases: descriptions, documents and a directory of resources in more than 40 countries. It now includes resources found in Québec and the other Canadian provinces.
Length: 42:23
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Click here for all video presentations from Living with a Disability Information Sessions |
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Click here for all the presentations from Neuromuscular Research Education Day (September 24, 2011) |
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11 Minutes/11 Muscles
Presenter: Jeff Sparks, National Director, Volunteer Engagement and Special Initiatives
Description: Jeff Sparks describes all you need to know about Muscular Dystrophy Canada in 11 minutes.
Length: 11:23
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Robotech Arm JACO
Presenter: Veronique Maheu, Kinova
Description: Veronique describes the technology and uses of the JACO arm, which is a robotic limb that can aid in mobility issues.
Length: 38:20
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Myasthenia Gravis, a neurologist's perspective
Presenter: Dr. Michael Nicolle
Description: Dr. Nicolle gives his own perspective as a neurologist on Myasthenia Gravis.
Length: 1:32:05
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Clinical Trials Webinar
Presenter: Dr. Craig Campbell, MD, MSc, FRCPC
Description: Dr. Craig Campbell provides information about the research process and progress of clinical trials for people with neuromuscular disorders.
Length: 1:02:14 |
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Families of SMA
Presenters: Dr. Louise Simard, Chair of the Medical and Scientific Advisory Committee and SMA researcher; Pascale Rousseau, Services Director, Quebec Region; Angela McGonigal, mother and volunteer; Stacey Lintern, Services Director, Ontario Region; Debra Chiabai, mother and Board member
Description: The speakers present highlights from the 2011 Families of SMA Conference and Parent Project Muscular Dystrophy Conference.
Length: 1:17:41
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Moving Forward with Duchene muscular dystrophy
Presenter: Dr. Doug McKim
Description: The videos provide education and information related to service needs experienced by individuals with DMD, their families and caregivers.
Length: Approx 47 mins |
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Beyond the Chair
Presenter: Andrew Shelley
Description: Andrew tells the amazing story of his solo trip across Asia in his power wheelchair.
Length: 55:35
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Click here to see all video presentations from Youth in Action 2010 |
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