September Is Muscular Dystrophy Awareness Month
I spend a lot of my time talking. Talking to people about muscular dystrophy, talking about the disease, its impact on individuals and their families, about the services we provide, the research we support in the hope that we find a cure. I talk a lot!
But, the reality is that some days I feel my story fails to resonate with others. Why? Because in our modern, lightning fast, overly connected, news all the time world, we get lost. I struggle to find a way to connect. Not connect you to me personally but to connect you to the individuals in the neuromuscular community.
In this busy, over connected, over stimulated world, we are all looking for a place to make a difference, one moment, one act of kindness that will touch someone else. I am asking you to join us again as we continue to connect individuals and empower clients to accomplish their dreams.
They are an amazing group of people with an incredible spirit and a desire to fully participate in society and to have people see them for who they are. This message is even more relevant as we celebrate Muscular Dystrophy Awareness Month this September.
Will you join us and donate to help support more families? Your gift makes a difference and reaches further than you ever expected.
Recently, I heard this story from a client and it made me stop in my tracks and think about the world we live in.
“I love summer because I can go to my favorite coffee shop and get a drink. Because I am in a wheelchair many times people will put money in my cup, right in my drink. I don’t ask, I am just enjoying a treat and people assume that I am homeless or need financial help.”
The look in his eyes as he shared this story is unforgettable. Can you imagine how that would feel?
One of our clients from Vancouver, BC shared what the word ‘disabled’ means to him. “To me, being disabled doesn’t mean ‘not being able’. I think a lot of people are scared of that word, but I think it’s important to call myself disabled because it lets people know what obstacles I’ve conquered and what I’ve had to go through.”
As the CEO of Muscular Dystrophy Canada, I hear stories like this everyday. I hear about the barriers individuals face and their unending hope for a cure. One of the most important parts of my job is to make sure donors, like you, know how much your donation impacts their lives and enables them to live a more independent life. It is your support that allows us to help them. But we have more work to do and more people to help. That’s why I am asking if you will make a gift today.
“Over the years Muscular Dystrophy Canada has helped me purchase many pieces of equipment including a manual wheelchair, electric scooters, ceiling lifts and more. I continually rely on Muscular Dystrophy Canada as my ability deteriorates. Future equipment will be mandatory for me as my disorder progresses and I know I can count on them to be there to support me,” says a client.
I’m happy to say that through supporting research, programs and services we are seeing individuals affected by neuromuscular disorders live longer. With that accomplishment comes the reality that as clients live longer, the need for specialized equipment, individualized support and enhanced community resources continue to increase.
I know that together, we can do so much more. We can continue to see clients keep their independence longer, accomplish their dreams, and most importantly, live longer, richer, fuller lives.
It’s Muscular Dystrophy Awareness Month. Will you join us and donate to help support more families? Thank you!
Chief Executive Officer
PS. On days when my life gets a little overwhelming, I think about our clients who are such an inspiration to me. Their strength keeps me pushing to ensure we can help them find solutions for their day to day challenges and continue to search for a cure. In the words of just one of these inspiring clients “having Duchenne muscular dystrophy is part of what makes me who I am; it doesn’t define what I can do. I don’t just have muscular dystrophy, I LIVE with it.”