Since 2012, Muscular Dystrophy Canada has made it a priority to raise awareness about respiratory care so that people affected by neuromuscular disorders have access to the information, services and supports they require.
Through our work in this area, we have come to understand that there is a need for investment into research to enhance the scientific evidence that is available to inform respiratory care decisions.
Under the expert guidance of our Medical and Scientific Advisory Committee, in May 2015, we launched a request for proposals for a second round of projects related to improving the respiratory health for people living with neuromuscular disorders.
The following four (4) projects were awarded funding:
- Translating Recommendations for Airway Clearance from the Canadian Thoracic Society guidelines for Home Mechanical Ventilation
Principal Investigator: Louise Rose (Sunnybrook Research Institute)
Co-Applicants: Doug McKim (The Ottawa Hospital); Jeremy Road (Vancouver General Hospital); Katie Dainty (Li Ka Shing Knowledge Institute of St. Michael’s Hospital); David Leasa (London Health Sciences Centre); Mika Nonoyoma (University of the Ontario Institute of Technology); Anu Tandon and Tasnim Sinuff (Sunnybrook Health Sciences Centre); Marta Kaminska (McGill University Health Centre); Colleen O’Connell (Dalhousie University Faculty of Medicine/Stan Cassidy Centre for Rehabilitation); Andrea Loewen (Peter Lougheed Centre); Meqan Johnston (University of Calgary)
- Clinical Determinants of Nocturnal Hypoventilation in Patients with Adult and Pediatric Myasthenia Gravis
Principal Investigator: Hans Katzberg (University Health Network/University of Toronto)
Co-Applicants: Clodagh Ryan, Vera Bril and Carolina Barnett-Tapia (University Health Network/University of Toronto); Indra Narang and Jiri Vajsar (Hospital for Sick Kids/University of Toronto)
- Assessing Air Travel Safety in Duchenne Muscular Dystrophy: Standard versus Prolonged High Altitude Simulation Tests
Principal Investigator: Reshma Amin (The Hospital for Sick Children)
Co-Applicants: Robert Varadi and Roger Goldstein (West Park Healthcare Centre); Laura McAdam (Bloorview Research Institute)
- Validation of home portable monitoring for diagnosis of sleep-disordered breathing in adolescents and adults with neuromuscular disorders
Principal Investigator: Marta Kaminska (McGill University Health Centre)
Co-Applicants: Basil Petrof, David Zielinski and Maryam Oskoui (McGill University Health Centre)