On October 16 – 17, 2014 the newly formed Canadian Neuromuscular Diseases Network held its inaugural meeting in the beautiful Rocky Mountains of Alberta at the world renowned Banff Centre.
75 people were in attendance including adult and pediatric clinicians from specialty neuromuscular clinics from across Canada; basic science researchers with interests in neuromuscular diseases from across Canada; representatives from industry; and administrators and patient representatives from Muscular Dystrophy Canada.
Attendees were challenged to present a brief synopsis of their current work in basic science, clinical research, industry or clinical care in short talks ranging from 4 – 7 minutes. A total of 47 speakers accepted this challenge with remarkable results!
The group was also provided with an update on the activities of the Canadian Neuromuscular Disease Registry.
Finally, the attendees were divided into 6 task force groups to address the future plans and action items for the Network around the following themes: Clinical Care, Research, Education, Engagement, Commercialization and Knowledge Translation.
Funding for the Network has been provided until March 31, 2017 by the Canadian Institutes of Health Research Institute of Musculoskeletal Health and Arthritis and Muscular Dystrophy Canada.
Next year’s meeting is planned for Sept 23 – 26, 2015 in Ottawa in conjunction with the 3rd International Conference on Neuromuscular Biology, Disease & Therapy. If you are interested to learn more about this meeting please contact the conference organizing team at OttawaNMD2015@ohri.ca.
More information on the Canadian Neuromuscular Diseases Network can be obtained by contacting Megan Johnston, National Director of Operations, at 403-210-7303 or firstname.lastname@example.org
Muscular Dystrophy Canada is thrilled to announce the creation of a pan-Canadian neuromuscular disease network. The network, which will be co-funded by CIHR and Muscular Dystrophy Canada, will involve researchers and neuromuscular disease clinical care personnel from across the country. It will empower patients and families through improved access to needed information, resources, and connections with each other through a patient portal.
The Canadian Neuromuscular Disease Network see what it’s all about!