Rare Disease Collaboration

Muscular Dystrophy Canada, in partnership with CIHR Institute of Genetics, is participating in the “E-Rare” initiative — led by ERA-NET is focused on advancing rare diseases research.

Rare diseases represent an important public-health issue, yet it is currently major challenge for research. The fragmentation of resources and knowledge for the 6000-8000 rare diseases and the lack of treatment for the majority of them necessitate a coordinated approach to unravel the underlying molecular defects and pathophysiological mechanisms.

AIM: To enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear translational research approach.

Projects can involve a group of rare diseases or a single rare disease. Muscular Dystrophy Canada will contribute funding to projects that are deemed relevant to our mandate of supporting research into the causes and treatments for neuromuscular disorders.

For more information, please visit the E-Rare website.

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