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Shoe Campaign – Getting your school involved in the Walk4MD

Chris Mino and his family

Chris Mino and friends

The Walk for Muscular Dystrophy brings together friends, family, communities, companies, and even schools! The Mino Family wanted to get their son Christopher’s school involved in fundraising for their Walk4MD team, Team Christopher. So in 2013, they approached the school about hosting a fundraiser. Chris’ teacher, the school principle, and his parents worked together to create the shoe campaign. Since then, more schools have been joining in – and we think yours should too!

How it works

A school can support the Walk for Muscular Dystrophy and/or a specific team by hosting a shoe campaign. Students can purchase a paper “shoe” for $2.00-$5.00. The kids can write their name and decorate the shoe, with them then being proudly displayed in the hallway! Challenge the school to have shoes covering from one end of the school to the other!

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Fostering Positive Communication Between Home and School

This article has been re-posted from the Waterloo Regional Family Network newsletter, Family Pluse. Click here to read the original newsletter

The summer is half over, and even though it seems like we just finished the transition into summer, it’s already time to start thinking about how to transition out. Preparing our children for the school year takes a lot of planning and preparation.

We’re very pleased that this year we have been able to put together a Back To School Seminar focusing on creating positive communication between home and school, with perspectives offered by parents and representatives from both school boards. It’s not always easy to support your child collaboratively in the educational environment they happen to be in. This panel will offer strategies and communication tips to ensure that close and trusting relationships can be developed with those responsible for your child’s learning environment. It will occur Tuesday Sept 1 from 7-9pm at The Family Centre, and we definitely encourage everyone to attend. More information is included in this issue of Family Pulse (see page 4).

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Strategies to Care for Your Breathing Muscles

There are three main reasons why caring for your breathing – respiratory – muscles is vitally important:

  1. They are needed to facilitate an effective cough
  2. Proper ventilation
  3. Reducing the risk of infection

Below we’ve pin pointed the respiratory therapies discussed in the ‘Strategies to Care for Your Breathing Muscles’ seminar that can be viewed below. Remember that coughing and removing secretions is of the utmost importance, and for more information please watch the playlist, read the Respiratory Care Guide, and speak with your doctor and/or Regional Services person. All of the therapies mentioned can also be found in the Respiratory Care Guide.

[youtube http://www.youtube.com/watch?v=lTSQ17lauPU&w=560&h=315]

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MuscleFacts creates lasting partnership with the Champlain School

Students of Miss. Beaudoin's class

Students of Miss. Beaudoin’s class

For the past several years, Muscular Dystrophy Canada has been organizing an awareness program called MuscleFacts for schools and families. This program aims at creating more welcoming school environments for people who have a neuromuscular disorder and works to promote a better understanding of what a disability is. Through interactive presentations, games and activities, this program helps children understand what physical disabilities are and helps educators efficiently integrate children with a disability by breaking down barriers, one class at a time.

On average, Muscular Dystrophy Canada gives about 50 MucleFacts presentations per year. These visits often mark the beginning of a wonderful partnership, like the one with the Champlain School in Sherbrooke, in the beautiful province of Quebec.

 

Alexis Boisvert with mother and brother

Alexis Boisvert with mother and brother

Alexis and his school

The Quebec Services Team went out twice to meet the students at Alexis Boisvert’s school. Alexis is a 10-year old boy who suffers from Steinert’s myotonic dystrophy. Afterwards, Alexis’ special education teacher contacted us because the school wanted to participate in the Halloween fundraising – where each child in the class is given a little piggybank to take with them on Halloween night to ask for small change donations. The school raised a little over $700.

The Christmas Market

But the ChamplainSchool didn’t stop there. Third-grade students from Ms. Lorraine Beaudoin’s class carried out a project that would allow the students to give back to their community. Since all the students know Alexis well, they decided to organize a Christmas Market, with the proceeds once again going to Muscular Dystrophy Canada! They all chipped in and created holiday decorations. They also

Students of Miss. Beaudoin's class

Students of Miss. Beaudoin’s class

asked other classes to participate and to provide various pieces. The Christmas Market was held on December 12th and raised $1,165.

By taking part in all these activities, students and teachers at the ChamplainSchool helped Muscular Dystrophy Canada fulfill its mission. But beyond raising funds, the focus was on involvement and awareness. The school and its teachers coached future adults who, through that experience, will be more aware and more inclined to get actively involved in their community and to help others… which is very worthwhile!

Many thanks to the Champlain School for helping make muscles move!

 

Learn more about MuscleFacts here: http://ow.ly/JxbwT

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New Ontario institute focuses on chronic disease and ageing

OIRMLet’s face it – Ontario has a large ageing population. Unfortunately, that fact often comes hand-in-hand with the overwhelming cost of managing chronic and degenerative conditions, such as muscular dystrophy and other neuromuscular disorders.

Fortunately, Ontario also happens to be a leader in regenerative medicine research. To support advances in this field and to address the staggering healthcare expenses affecting Ontario’s aging population, the Government of Ontario is funding the new Ontario Institute for Regenerative Medicine (OIRM) – a research and development institute developed to help transform stem cell research into curative therapies for major degenerative diseases.

The goal of this collaborative initiative between the Ontario Stem Cell Initiative (OSCI) and the Centre for Commercialization of Regenerative Medicine (CCRM) is to help treat, manage and work towards finding a cure for some of the world’s most devastating disorders, all the while offering significant economic benefits.

OSCI brings together a team of accomplished stem cell researchers, tissue engineers and clinicians, while CCRM’s commercialization focus and strong network of industry partners will help facilitate academic discoveries and clinical trials.

What is meant by regenerative medicine? This is a multidisciplinary approach that harnesses the power of stem cells, biomaterials and molecules to repair, regenerate or replace diseased cells, tissues and organs.

Stem cells were first discovered in Ontario and this new institute will help reinforce Ontario’s leadership position in regenerative medicine, says Janet Rossant, Interim Director of the OIRM.

“Ontario is the birthplace of stem cell discovery – it’s wonderful to be able to continue this legacy.”

Please see this press release for more information: http://ontariostemcell.ca/sites/default/files/ontario-supporting-groundbreaking-stem-cell-research-1.htm

 

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