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Helen shares her story and her thanks

Hi everyone!

HelenSparkyPaulMy name is Helen Ma. I’m a twelve year old who spends most of my time with my nose stuck in a book or with my eyes glued on to my mother’s Ipad (Angry Birds is always a very pressing matter). I live with my over protective mother, my under protective father, my grandparents who answer every phone call with “my English not good” and my two younger siblings who have a lot of attitude packed into a small package. I also live with this slightly annoying, thorn at my side, pain in the butt thing called Spinal Muscular Atrophy, or SMA for those of you who are too lazy to write the full name.

SMA is a neuromuscular disorder covered under the umbrella of muscular dystrophy. Muscular dystrophy affects many people around Canada. Sure, muscular dystrophy is hard to live with but some of the best moments in my life would have never happened if I didn’t have SMA. Zip lines, ferry rides and Disney World experiences were all thanks to SMA, and the people who help support those who have it.

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