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Babies with SMA to be covered in BC for Life Saving Drug

Different types of Pills

Muscular Dystrophy Canada congratulates the BC government for their leadership in providing this important treatment to children impacted with SMA Type1. We continue to work tirelessly with governments and partners to ensure more Canadians with a neuromuscular disorder have access to the latest treatments.

We were please to participate in the first review of Spinraza with CADTH and INESSS through our patient submission and we have completed a second submission encouraging them to revisit the use of Spinraza in other types of SMA.

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Learn more about Spinraza

Spinzara to be Proviced for SMA Type 1 Patients
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Update: Respiratory Care Seed Grants

lungs

Muscular Dystrophy Canada has made it a priority to support research into areas that affect the quality of life of people living with neuromuscular disorders. One of the key issues that impacts on quality of life is respiratory health.  Through its focus on Respiratory Health, Muscular Dystrophy Canada has produced evidence-based resources such as The Guide to Respiratory Care for Neuromuscular Disorders, which is used by patients, families and clinicians across Canada and internationally to help guide care decisions.

Through the Seed granting process, Muscular Dystrophy Canada is supporting research projects that focus on enhancing respiratory health and quality of life in a range of neuromuscular disorders. The Seed granting process is now in its third year, with a number of new proposals currently being considered by a panel of expert reviewers. The results of this research will guide evidence-informed care, and will contribute to the timely and efficient translation of innovations from the research setting to patient care settings. Please stay tuned to the website this fall as we announce the successful projects!

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