Posts Tagged ‘government’


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Babies with SMA to be covered in BC for Life Saving Drug

Different types of Pills

Muscular Dystrophy Canada congratulates the BC government for their leadership in providing this important treatment to children impacted with SMA Type1. We continue to work tirelessly with governments and partners to ensure more Canadians with a neuromuscular disorder have access to the latest treatments.

We were please to participate in the first review of Spinraza with CADTH and INESSS through our patient submission and we have completed a second submission encouraging them to revisit the use of Spinraza in other types of SMA.

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Learn more about Spinraza

Spinzara to be Proviced for SMA Type 1 Patients
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Fighting for a National Assistance Program for Canadians with Disabilities

The petition has been tabled by the House of Commons. To review the discussion, please visit here.


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tumblr_naubxpi8eo1tubinno1_1280I first started my petition on back in November 2015 after writing a letter to Prime Minister Trudeau asking him to implement a National Assistance Program for Canadians with Disabilities. The purpose of the petition is to implement legislation that will provide all Canadians living with a disability with the equipment and services they require to live functional lives. This directly complements the impending Canadians with Disabilities Act (CDA)- which aims to create an accessible and inclusive Canada – as such a program would help to fulfill that purpose by providing the supports necessary to allow all Canadians living with a disability to contribute to society regardless of ability.


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