To raise awareness about myotonic dystrophy and improve the quality of life of people living with the disorder, over 50 myotonic dystrophy-focused organizations from around the world have united to celebrate Myotonic Dystrophy Families Day on July 23, and International Myotonic Dystrophy Awareness Day on September 15.
In addition to the Alliance’s core mission of raising myotonic dystrophy awareness among the general population, this year the focus will also be on raising awareness and education among clinical care teams, and clinical trial readiness for participants.
“Muscular Dystrophy Canada is honoured to work with organizations in the Global Alliance for Myotonic Dystrophy Awareness Initiative. Together we can make a difference,” said Stacey Lintern, CEO, Muscular Dystrophy Canada.