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Team Ambassador raising the bar for the Saskatoon Safeway Walk for Muscular Dystrophy

 

Georgia and her sister Charlotte.

Georgia and her sister Charlotte.

Since our children have been diagnosed with Spinal Muscular Atrophy (SMA), our awareness regarding people with neuromuscular conditions has skyrocketed. We are starting to recognize that although there is no current cure for many of these conditions (including both SMA and other forms of muscular dystrophy); walks such as these not only increase support for these specific conditions, but also increase societal awareness for the daily difficulties that must be overcome for both the people living with the condition, and their caregivers. There is a current goal by our government to make Saskatchewan the most livable province in the country for people with disabilities, and having walks such as these continue to support this endeavour.

Everyone feels at least some things in their life are out of their control, but when Georgia was diagnosed with SMA we felt that almost ALL things were out of our control. We were afraid and helpless, and didn’t know what to do. But the tide is turning. We are no longer asking the ‘why us’ question, but rather the ‘what next’ question. And that is where walks like this are so vital. It is time to look at today, tomorrow, and beyond. How can we support those with neuromuscular conditions today, and cure the conditions tomorrow and beyond? Public knowledge and support into these devastating conditions WILL lead to tangible changes.

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