On April 1, 2011 we found out that our 4 year old son Austin had Duchene Muscular Dystrophy (DMD). This is the day that we realized that our sweet little boy was in for a long road ahead full of many challenges. This is the day that we will never forget; it is the day that our lives were changed forever.
DMD is a fatal genetic disorder that gradually weakens the body’s muscles. There are different types of muscular dystrophy: Duchenne is both the most common and the most severe form of the disease, affecting 1 in every 3,500 boys. Because the Duchenne gene is found on the X-chromosome, it primarily affects boys and it can occur in all races and cultures. Although there isn’t a cure yet, there has been great progress and the question to finding the cure isn’t “if” but “when” the cure will be found.
Shortly after Austin’s diagnosis we found out about the Walk for Muscular Dystrophy in Halifax where we put in our team “Little Man Austin” to help fundraise for this amazing cause. On the day of the Walk we met an amazing group of people and have been involved ever since.
Although we haven’t needed Muscular Dystrophy Canada directly yet for equipment, they have been a great help emotionally. Muscular Dystrophy Canada also donates towards research for the cure. It is great to know that they will be there when we need them for help down the road, whether that is next week, next month or in a few years.
This year, our family were the Halifax Walk for Muscular Dystrophy Ambassadors! It was great to lead the Walk (even in the rain) and talk to lots of people including Breakfast TV about this important cause.
We were able to involve lots of family and friends in our fundraising and were very happy to win the Top Team trophy raising $9226.00!
Let’s make a difference for our “Little Man” and others that are affected by muscular dystrophy and give generously to this great cause.
The Sweet Family