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Living with Muscular Dystrophy has to involve a positive attitude. There are lots of obstacles with Muscular Dystrophy that include the loss of strength and mobility, loss of friends with Muscular Dystrophy, fear and depression. But there are ways to overcome this by becoming proactive and helping others with Muscular Dystrophy. Muscular Dystrophy Canada has provided me the opportunity to become proactive by allowing my participation in their fundraising events and Muscular Dystrophy Firefighter Conventions. Therefore it has provided positive energy for me and allowed my dream to come true as a public speaker.

I started speaking at 12 when I became a Muscular Dystrophy Canada Campaign Assistant which involved an interview for the annual Labour Day telethon to raise funds for Muscular Dystrophy. Although it did not appear on television it opened the doors for more opportunities for involvement with Muscular Dystrophy Canada. I participated in my first Muscular Dystrophy Firefighter Convention and did my first ever speech. The speech is one I will never forget. I was on stage after watching a comedian, which caused me laugh during my speech when I lost track from the notes I was reading from. But I was able to improvise and finish my speech. Furthermore I rebounded with a speech at a charity golf tournament for Muscular Dystrophy Canada to say thanks to the people for attending and the people that made it happen.  I have done four other presentations at Muscular Dystrophy Firefighter Conventions which included 2 speeches for the Muscular Dystrophy Canada career program named Bridges to the Future and 2 speeches about life with Muscular Dystrophy. The two speeches about my life story with Muscular Dystrophy have been successful that I have gone to the Justice Institute of British Columbia to talk to future firefighters about the firefighters’ tradition of fundraising for Muscular Dystrophy Canada. Speaking at an early age has given me the confidence to still speak at conferences and speaking engagements today. (more…)

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Fifteen Years of Volunteering: Profile on George Brinton

George in the officeGeorge Brinton is one dedicated, self-less individual. He has been volunteering with Muscular Dystrophy Canada for over 15 years in our Vancouver office. Over those 15 years, George has certainly seen a lot of changes and growth within the organization, but his reason for volunteering remains the same – help in anyway he can to help find a cure for muscular dystrophy.

“Just because you have a disability, doesn’t mean you can’t contribute to society. If everybody did a little bit to help, it would make a big difference.”

Back in the late 1990s, George decided to be more involved in the organization as he himself has FSH Muscular Dystrophy. George helps out around the Vancouver office with preparing materials for events and  stuffing envelopes among other things. At conferences and regional Walk for Muscular Dystrophy events he helps with registration, provides inspiration… you can always spot George with his Canadian flag flowing behind him off his wheelchair.

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Team Maliyah – Vancouver Safeway Walk for Muscular Dystrophy

Vancouver Walk 2012-Team MaliyahMaliyah Chung was only 14 months old when she was diagnosed with Spinal Muscular Atrophy Type 2. A bright, determined young girl, Maliyah uses a wheelchair because of her condition and progressive weakness. But getting around in a 300+ pound wheelchair isn’t easy for Maliyah, especially at home where stairs, corners, doormats, and even the bathrooms, are obstacles. Thanks to Canada Safeway, Maliyah now has the freedom to access every area of her home. The Chung Family received a generous donation through the Safeway Mobility Grant,  allowing them to make essential home renovations to enhance Maliyah’s quality of life.  Today, Maliyah can travel all over her house.

As her parents, Joel and Farah tell us, “With all of the challenges she has and will continue to face, the thought of Maliyah being confident, as independent as she can, and free in her own home brings happiness to us.”

MaliyahThe Chung Family participated in this year’s Safeway Walk for Muscular Dystrophy in Vancouver, BC. Donned in their own team t-shirts , Team Maliyah arrived at our Jericho Beach Walk with an amazing 70 people along with them! They won the Largest Team Award and raised $3,120 for Muscular Dystrophy Canada this year! Thank you to the Chung Family for bringing their spirited family and friends to the Safeway Walk for Muscular Dystophy and for helping us help others affected by neuromuscular disorders!

Support the Chung Family by voting for the family to win a grant with the Aviva Community Fund for an inclusive wheelchair playground in Port Coquitlam, BC. Vote today and tomorrow! The polls close December 12th.

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