Then and Now
Living with Muscular Dystrophy has to involve a positive attitude. There are lots of obstacles with Muscular Dystrophy that include the loss of strength and mobility, loss of friends with Muscular Dystrophy, fear and depression. But there are ways to overcome this by becoming proactive and helping others with Muscular Dystrophy. Muscular Dystrophy Canada has provided me the opportunity to become proactive by allowing my participation in their fundraising events and Muscular Dystrophy Firefighter Conventions. Therefore it has provided positive energy for me and allowed my dream to come true as a public speaker.
I started speaking at 12 when I became a Muscular Dystrophy Canada Campaign Assistant which involved an interview for the annual Labour Day telethon to raise funds for Muscular Dystrophy. Although it did not appear on television it opened the doors for more opportunities for involvement with Muscular Dystrophy Canada. I participated in my first Muscular Dystrophy Firefighter Convention and did my first ever speech. The speech is one I will never forget. I was on stage after watching a comedian, which caused me laugh during my speech when I lost track from the notes I was reading from. But I was able to improvise and finish my speech. Furthermore I rebounded with a speech at a charity golf tournament for Muscular Dystrophy Canada to say thanks to the people for attending and the people that made it happen. I have done four other presentations at Muscular Dystrophy Firefighter Conventions which included 2 speeches for the Muscular Dystrophy Canada career program named Bridges to the Future and 2 speeches about life with Muscular Dystrophy. The two speeches about my life story with Muscular Dystrophy have been successful that I have gone to the Justice Institute of British Columbia to talk to future firefighters about the firefighters’ tradition of fundraising for Muscular Dystrophy Canada. Speaking at an early age has given me the confidence to still speak at conferences and speaking engagements today.
I have given back to Muscular Dystrophy Canada: by fundraising, by visiting and advertising boot drives, by shooting a client video, by participating in a Shell Buzzy fundraiser and doing a ceremonial puck drop between Ryan Walter and Ron Duguay at a celebrity pro-am charity hockey game. Muscular Dystrophy Canada is a helpful foundation that I am thankful for because of their efforts to fight this disease. But I’m also here to help others live Muscular Dystrophy. Therefore I assist Muscular Dystrophy Canada by attracting more donations by providing awareness through fundraising and public speaking.
When fundraising or going to speaking engagements it gives me a chance to provide uplifting positive energy onto others. Therefore people want to know where the money is going and how to receive more donations. People with Muscular Dystrophy need positive energy to shine over the dark cloud. Talking about the negative parts of Muscular Dystrophy provides me the strength to provide positive energy to become proactive by attracting others to help people with Muscular Dystrophy. Furthermore getting money donated to this organization can provide abilities with equipment, career counseling, support groups, support programs and provide much needed research programs and trials. Being able to talk to people makes me fortunate to continue my dream of speaking and provides me positive energy to be thankful to be alive because of people being proactive against Muscular Dystrophy.
Stephen Rysen is a 30 year old with Duchenne muscular dystrophy. He has been volunteering with Muscular Dystrophy Canada since 1995, and continues to be spread awareness today by getting involved in the fire department, speaking to new fire fighter recruits, speaking at fire fighter conferences, and fundraising in the Walk for Muscular Dystrophy. Stephen has been named the 2014 Vancouver Safeway Walk for Muscular Dystrophy Ambassador. His positive attitude continues to inspire everyone around him.
Register for a Walk near you today!