Muscular Dystrophy Canada is a founding member of Neurmological Health Charities Canada (NHCC). By bringing together stakeholders groups which share common experiences and common links with one another, NHCC is able to provide leadership in evaluating and advancing new opportunities for collaboration related to neurological disorders specific to advocacy, education and research projects. The first and most pressing issue that the NHCC tackled was the lack of data and information about neurological conditions in Canada.
NHCC collaborated with the Public Health Agency of Canada to lead the first-ever National Population Study of Neurological Conditions (NPHSNC). The NPHSNC was a 4-year project (2009-2013) funded by a $15 million investment from the Government of Canada. The study sought to learn more about the experiences of people impacted by neurological conditions and to address the lack of information related to neurological conditions in Canada.
130 academic and clinical investigators from 30 institutions across Canada worked collaboratively to improve the Canadian understanding of the:
In addition to the scientific evidence gathered through the research program of the NPHSNC, approximately 177,000 Canadians with neurological conditions, caregivers, health charity representatives and public policy leaders offered insight and personal experience into key areas of the study. Mapping Connections: An Understanding of Neurological Conditions in Canada, the final report of the NPHSNC, integrates insights from the stakeholders with key research findings.
For a quick overview of the study and its major findings please see Fact Sheet – Mapping Connections: An Understanding of Neurological Conditions in Canada.
Read the full report of the National Population Health Study of Neurological Conditions
Details, Facts, Key Messages, Quotes Findings from the National Population Health Study of Neurological Conditions
More about the Neurological Health Charities Canada