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Working Together for Change in Quebec

Muscular Dystrophy Canada engages in social action to ensure that people with neuromuscular disorders can participate fully in all aspects of daily living. We aim to do this by working with other organizations to bring about policy changes at the provincial and federal level, and by providing volunteers in community chapter offices with tools they need to participate in local advocacy efforts.

Since its creation, Muscular Dystrophy Canada has tried to make the public and the healthcare system aware of the problems faced by people with neuromuscular disorders. Muscular Dystrophy Canada works with various advocacy groups whose primary mission is to defend the rights and interests of people with disabilities by advocating for policy changes at the local, provincial and federal levels.

COPHAN

The Confédération des organismes de personnes handicapées du Québec (COPHAN) is a provincial organization whose mission is to collectively defend the rights of people with functional limitations and their families. This mission’s ultimate goal is full social inclusion. COPHAN is made up of more than 30 national organizations, including Muscular Dystrophy Canada, and 200 regional and local groups, all representing the interests of people affected by disabilities.

Muscular Dystrophy Canada’s role

Muscular Dystrophy Canada works closely with this group and their member organizations on the following committees:

  • Health and social services
  • Universal access
  • Alternatives to accommodation in long-term care facilities
  • Employment
  • Homecare services
  • Genetics

Muscular Dystrophy Canada constantly monitors public policies that affect people with disabilities, such as work-family balance, fair compensation for people with disabilities, etc.

All these actions have the same objective: defending the rights of people with disabilities. Besides the discussions and analysis, we must mobilize the network by having information sessions for the general public, healthcare system stakeholders and decision-makers. We also conduct mass mailings and work with the media to spread our messages.

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