Parents & Families
Parents of children who have been recently diagnosed with a neuromuscular disorder face new challenges and difficulties. Muscular Dystrophy Canada has developed a guide to help find support within your life and community, and to develop and strengthen the relationships that are most important during this time.
Download "Why Me? A guide to living with your child's neuromuscular disorder".
|
The Management of Congenital Muscular Dystrophy: A Guide for Families |
If you would like to receive a printed copy of any of these publications, please contact your local office, or call 1-866-687-2538 or email info(at)muscle.ca |
|
Muscular Dystrophy Canada’s "MuscleFacts: Parent Guide" provides information to help parents navigate various issues that may arise following diagnosis. |
|
 |
The Diagnosis and Management of Duchenne Musuclar Dystrophy: A guide for families |
Additional Resources:
- Learning to Live with Neuromuscular Disease - A Message for Parents
A booklet for parents who’ve recently learned their child has a progressive neuromuscular disease.
- Helping Kids to Understand their diagnoses
Telling children about their neuromuscular diseases is a necessary, delicate conversation.
- Talking With Children About Their Neuromuscular Diseases
How to deal with hard topics such as being different, life expectancy and the reasons why this is happening.
- First Day of School
Starting the school year on the right footing can turn fears into fun and friendship.
- Learning new ways to learn
Parents, teachers and students can work together to find and create modifications assuring that these children get the appropriate level of educational challenge.
- Just say yes to exercise
Those who exercise enjoy many benefits, including continued mobility, improved endurance, better cardiovascular health and a sense of well-being.
Provides information, support, and ideas for parents, families, and professionals working with children with disabilities. Provides information specific to education, technology, and mobility.
The National Educational Association of Disabled Students (NEADS) is a consumer organization, with a mandate to encourage the self-empowerment of post-secondary students with disabilities. They offer an on-line directory of financial assistance, scholarships and bursaries available to students with disabilities.
